The objectives of NPSuisse:

  • Advice, support and attendance of patients affected by the Niemann-Pick disease.
  • Information to interested parties, media, professionals, government agencies and the public.
  • Encouragement of self-help groups, optimal care and support modes, instructions for patients and research coordination.
  • Representing interests of affected people in public matters, in particular when dealing with political and health care authorities.
  • Exchange of experience with patient associations and disease experts in Switzerland and foreign countries.