Three teams for NP Suisse at the Zurich Marathon
Three teams competed at the Zurich Marathon for NP Suisse today. All teams have shown great commitment. Thank you very much! Results Team 1, Results Team 2, Results Team 3.
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News
Charity-Shop in favor of INPDA
The Pactimo on-line charity shop supporting the International Niemann-Pick Disease Alliance (INPDA) is now open! Summer is coming, get biking suit or sports T-shirt for you, your biking/sports team, family, friends, or friends of your friends! Your purchase will provide support to charity projects of INPDA and help to promote the Think Again-Think NP-C campaign to a worldwide public. Thank you on behalf of the global INPDA community! To the shop.
«The hope of Lili » (GEO 05/2016)
"It itches in my brain," said Lili at the age of 6 years. Even then her illness undoubtedly progressed: the mysterious Niemann-Pick syndrome. One of the many ultra-rare diseases which we can not cure. A disease that leads families of patients to their limits. A disease that poses a challenge to our health system. Full story in German.