Niemann-Pick Selbsthilfegruppe e.V. Germany: new website
Niemann-Pick Selbsthilfegruppe e.V. Germany has a new website https://niemann-pick- selbsthilfegruppe.de/
Niemann-Pick Selbsthilfegruppe e.V. Germany has a new website https://niemann-pick- selbsthilfegruppe.de/
The annual report 2021 by Christoph Poinciliit and the white paper mentioned in it are available for download. Annual report | White paper
The two sons of the Benz family from Heerbrugg have Niemann Pick, an extremely rare metabolic disease. The parents have rebuilt the house so that they can continue to come home. The fundraising campaign for the help of Eastern Switzerland has supported it. Full story