The Pactimo on-line charity shop supporting the International Niemann-Pick Disease Alliance (INPDA) is now open! Summer is coming, get biking suit or sports T-shirt for you, your biking/sports team, family, friends, or friends of your friends! Your purchase will provide support to charity projects of INPDA and help to promote the Think Again-Think NP-C campaign to a worldwide public. Thank you on behalf of the global INPDA community! To the shop.


"It itches in my brain," said Lili at the age of 6 years. Even then her illness undoubtedly progressed: the mysterious Niemann-Pick syndrome. One of the many ultra-rare diseases which we can not cure. A disease that leads families of patients to their limits. A disease that poses a challenge to our health system. Full story in German.