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  • NPC - one of all the rare diseases
    NPC - one of all the rare diseases

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News

«Rare diseases cause lots of problems» (ZAS)

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28 February 2016

"Tomorrow, February 29, is the International Rare Disease Day. Rare sounds associated with diseases as an interesting issue. But rare diseases have disastrous consequences for patients." Full story in German.

«Our world is broken in pieces» (Gelnhäuser Newspaper)

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27 February 2016

Diagnosis of Niemann-Pick disease: The host couple Appel talks about the rare metabolic disease of their son Maximilian. Full story in German.

«Hope, fear, life» (Media Planet)

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27 February 2016

"Mael carefully reads the full sentence in his reading book. The nearly eight-year-old boy from the Canton Lucerne attends the second class. This is a regular class. Except this, everything else is different in Maels life. He has a rare disease. Mael was born on 18 April 2008. As firstborn by happy parents with two younger brothers. Full German report in Mediaplanet.

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