Niemann-Pick and other rare diseases in the media:
2013, November 16th: A Desperate Fight to Save Kids & Change Science (Wallstreet Journal) In the online edition of the Wall Street Journal appeared a very detailed report about Niemann Pick disease type C and the potential therapy with cyclodextrin. Link to the article.
2012, June 20th: "Hempel Twins Fight for Life" (News 4) Greg Crawford, Dean of the College of Science at the University of Notre Dame, is riding his bike across the country in a "Road to Discovery" to raise awareness about the rare childhood disease Niemann Pick Type C (NPC). On Tuesday, Crawford made a stop in Carson City to meet the Hempel family from Reno. Chris and Hugh Hempel's twin daughters, Addi and Cassi, were diagnosed with NPC in October 2007 at four years old.