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Niemann-Pick and other rare diseases in the media:

2012, June 20th: "Hempel Twins Fight for Life" (News 4)
Greg Crawford, Dean of the College of Science at the University of Notre Dame, is riding his bike across the country in a "Road to Discovery" to raise awareness about the rare childhood disease Niemann Pick Type C (NPC). On Tuesday, Crawford made a stop in Carson City to meet the Hempel family from Reno. Chris and Hugh Hempel's twin daughters, Addi and Cassi, were diagnosed with NPC in October 2007 at four years old.



2012

Print/online
- "One woman's story of coping with a rare disease" (World Radio Switzerland, 29th February)
- "What is it like to be diagnosed with a rare disease?" (www.zug4you.ch, 24th February)

For news and media reports in other languages, go to the relevant pages (German, French, Italian).